Ramblings about living a healthy lifestyle while living with a chronic illness. Written by a retired SURGICAL PATHOLOGIST with Cystic Fibrosis, who is living the REST of her life studying and teaching WELLNESS.

Sunday, June 15, 2008

Run, Walk and Roll

It’s a hot, summer day last August. The “world’s champion” (not really, but we thought so) Frisbee dog, my 13 year old Border Collie, Cisco, is out in the back yard chasing squirrels with his two schnauzer brothers-from-another-mother, Wiley and Jaxon. This is their favorite game, and I am watching them from my glass- enclosed office, where I am sucking on some hypertonic saline. Cisco has been the most athletic dog I have ever known…literally winning regional Frisbee catching competitions, running with me wherever and whenever I go, defying any and all attempts to contain him his entire life by either jumping fences or opening gates. I kid you not; he could star in his own television show with episode after episode of tales of his pure determination and ingenuity in fulfilling his life’s work, never letting me out of his sight.

But this day, he knows I am safe, and his focus is on the squirrel above him, taunting him from the telephone wire. Another squirrel joins the game from the edge of the yard, and the schnauzers are off like lightening, tearing across the grass at a speed I didn’t know was possible. Cisco starts to follow, and then I hear the most heart-breaking and terrifying scream emit from his mouth as he flops on his back and writhes in agony.
It takes me two nanoseconds to get to him, and less time than that to realize that he is in serious trouble. He clearly can’t move his back legs, and I can literally smell his terror in the air.

Fortunately, the boys are with me, and we get him in the car and to the vet as fast as we can. One X-ray later, we are rushing to another veterinary office, where they specialize in back surgery. I get the news there: he has ruptured a disk in his vertebral column, and he needs immediate surgery to decompress his spine. He will “likely” be able to walk again, but every second that passes decreases the chance of significant recovery.

There I am with two young and very upset kids and a dog that is like another child to me, barely looking at the price estimate. You can’t place a price on my relationship with this dog. He’s been through thick and thin with me. For thirteen years, he has always been there for me, and now I needed to be there for him, big time. I call my partner, and we decide…we’ll figure out how to pay for it later.

Days later, we take him home. The few weeks that follow are a bit of a blur. I nurse that dog like a baby. I learn how to “express” his bladder because those nerves don’t work at first. I put diapers on him, and “chucks” under him, often to no avail. I get peed on and pooped on and even nipped when he was hurting, just like old times with the boys! I even put my pillow down on the ground next to him and sleep with him at night, holding his paw and stroking him so he knows I’m there…otherwise he cries and neither of us gets any sleep. I carry him everywhere because if I leave the room for a minute, he starts yelping, “Mommy…where did you go???” in dog. Forty-three pounds of limp Border Collie is a LOT of weight to move ten times a day, and I am very appreciative of all the dead lifts I’ve done at the gym.

Then, physical therapy starts (think “ching”). I learn to “walk” him using a sling for his rear end. He gets massages, and TENS, and learns to walk on an under-water treadmill. The therapists and I actually re-teach him how to walk again by moving his back legs over and over again in a bicycle motion and flexing and extending his bad leg over and over. Then, one day at therapy, he struggles to his feet by himself and sort of pulls himself by his front paws across the room toward me as his back legs stagger and slide. He moves about 7 steps before he falls down. It definitely wasn’t pretty, but this is the first time he is able to move on his own accord and we cheer and scream for joy. I swear he’s smiling!

Winter comes, and I have probably my worst cold season ever. I’ve got a PICC line in for many, many weeks and am having other health issues recovering from a DVT in my arm. Still, Cisco and I make our daily treks around the neighborhood. There we are… I’m coughing and infusing, and my faithful boy is limping and sliding along at about the speed of a slug. Sometimes it’s not clear who is taking whom out to walk, but nothing keeps us from our daily treks.

As I write this, it is summer again, and I am happy to report that Cisco is still with us, as a much older (functionally) and much lighter and greyer version of his old self. His back hips and legs have atrophied down to the bone. He’s recovered some of his strength, but still needs assistance with his “morning constitutional” (which, by the way, is a total misnomer… It happens at all times of the day). Every morning, afternoon, and evening, Cisco and I go for our stroll around the neighborhood, him hobbling slowly but with as much dignity as he can muster with me holding up his butt with a sling. When he sees other dogs, he still growls with the best of them, and, oddly, seems to forget that he is disabled as he tries to chase them down, dragging his left leg (and me) behind him as I desperately try to keep holding the sling.

This is similar to me doing push-ups and yoga with the PICC line in (Did I mention I developed a DVT?). Anyway, the point is, you can’t keep us down. We are there for each other, and we are quite a pair! End of story.


Why am I telling this story? What in the world does it have to do with cool equipment and technology that makes life easy? Well, Cisco and I were chatting just the other day. It turns out that we are both getting rather tired of going around the same old area, the same houses, the same trees and plants. We both want to go new places, see new things, growl at new dogs. But he just doesn’t have the stamina to go too far from home.

So I made him an appointment to get fitted with a K9-cart. These are so cool! They are “wheelchairs” for dogs. You put the dog’s hindquarters in a type of sling, and they pull themselves around on wheels! He’s going to be so happy. I can’t wait to get it.

Finally, we are back to why I wanted to tell this story. I once told my partner, who was trying to convince me that long distance running may not be my best exercise option, that I had to run….well, jog. I used to run. I ran until I couldn’t anymore. Then, I started to jog. Then, the continuous jog became a jog/walk. This is where I’m at now. When I can’t do that anymore, I will walk. When that becomes too hard, I will walk very slowly. When that becomes too difficult, I guess I’ll roll (but I’ll pull myself along).

Cisco is the dog model of exactly the way I plan to do it. He used to run like the wind. He could jump tall buildings. He could open any door. He could do crossword puzzles. He was Cisco, the Wonder-Dog. Now, he drags himself around, limping after me, wherever I go. He uses mostly his front paws and stumbles and falls quite a bit, but unless there is a need to squat (as I referred to above), he gets around on his own. Not only that, but he still tries to chase the schnauzers around the yard, squeaking his ball like crazy while they wrestle. It’s becoming hard for him though. He’s decided it’s time for some assistance, and I agreed. Now we’ll roll. Well, he’ll roll. I’m still jog/walking for a while longer.

So maybe you can’t run. I bet you can walk. I even bet that some of you, who think you can’t run, can build up to a jog. Or maybe you’d be happier on a bike…or roller blades…or swimming in a pool. If you are still breathing, you can do something! Even if your breathing is labored, or you have problems with desaturation with exercise, they make some awesome portable O2 tanks these days. Not only that, but there are portable O2 saturation meters that you wear on your finger so you know how much oxygen you need! There are heart rate monitors, portable blood glucose meters, GPS devices…you name it! Check out Jerry Cahill on You Tube as he takes his oxygen tank for a run (http://www.youtube.com/watch?v=dT6aEuZKpC4). Take a cue from Cisco, and from me, and from Jerry: Keep moving, no matter how it looks, and keep squeaking your ball.

2 comments:

Tracy Vebber said...

Julie - Thank you for the stories and the high quality information. I am married to Brett, a 38 yo with CF who is not a very healthy eater or an exerciser. I am trying to simply model these things and also locate solid resources for CF on nutrition and fitness. Your website and blog are at the top of the list! Thank your for investing in a 2nd career and using your life and professional experience to help others. You are an inspiration to me!

Tracy Vebber
Birmingham, AL

Julie Desch said...

Thanks, Tracy. I didn't know anyone actually read these things! I'll keep talking, and you keep after Brett, ok?
Julie